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Issues with Patient Information Quality
Patient information leaflets (PILs, documents used to inform patients about clinical trials) have been found lacking. They are badly written, hard to understand and are not read. However, these documents are essential to enable informed consent.
Results so far
• Public feedback captured on PILs relates to issues in writing and information presentation
• The use of subjective grading for PIL quality only accounts for 8% of the variance in patient understanding scores (study based on EQIP score & Knapp topics).
• When comments on specific PIL sections are analysed independently, general comments and subjective leaflet quality grades do not contribute significantly to EQIP score
Challenge
Can text analytics enhance the public feedback on Patient Information, by:1. Identifying sections that produce highly
emotive comments that compromise quality.2. Employing quantitative content analysis
metrics to identify sentences that are too hard to understand.
3. Employ comments from similar leaflets to enhance the feedback to the leaflet author.
About Me !
I’m a Mexican student doing a PhD in Web Science at University of Southampton. I have a BSc in computer science and an MSc in Web Science. I like reading, gothic rock and extra spicy food.
SPECIFIC COMMENTS
Is this -rehabilitation- to cut cost by the NHSWhat was the result of previous studies & how long ago?-Rehabilitation- may needed to be explained to an old personI would like this to be on a website or email as it is a lot to ask people to write Don't fully understand what a randomised controll is.
Wordy
Why are they doing it then?
GLOBAL COMMENTS
I think it could have been presented in a clearer way by making it more visually It was explicity and it encouraged people to take part in this study, while also
It was interesting but confusingThe leaflet was ok and covers the relevant questions
It was excellent
Original PIL Document
Json Representation Web Platform to Collect Public Feedback
Adding:Sentiment AnalysisContent AnalysisClustering Analysis
Enhanced feedback for the leaflet author