F% 5 .G@LG FGC % % @! C% G G% CEAGC, @ GF · 2020. 5. 6. · FCGC% +" EC E AL 5L GG 5LGGFCGC% +" E...

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C!%G 1FE C@@CEG!C% GJ% +E EFE !F F+DDCEG L G .G!C%@ 1FE C+%G!C% E!A !%!FGEMF ! !%DCE +%E !GF 1 +%!% %!G!G!I E%%C %GCF FCGC%+" EC EAL 5LGG 5LGGFCGC%+" E %FF!F !ECD%!F !ECD%!FC+GADGC%+" F!% 5 .G %@LG!F GC %% +@! " C% G!%G %CEAG!C% ,@GF Issues with Patient Information Quality Patient information leaflets (PILs, documents used to inform patients about clinical trials) have been found lacking. They are badly written, hard to understand and are not read. However, these documents are essential to enable informed consent. Results so far Public feedback captured on PILs relates to issues in writing and information presentation The use of subjective grading for PIL quality only accounts for 8% of the variance in patient understanding scores (study based on EQIP score & Knapp topics). When comments on specific PIL sections are analysed independently, general comments and subjective leaflet quality grades do not contribute significantly to EQIP score Challenge Can text analytics enhance the public feedback on Patient Information, by: 1. Identifying sections that produce highly emotive comments that compromise quality. 2. Employing quantitative content analysis metrics to identify sentences that are too hard to understand. 3. Employ comments from similar leaflets to enhance the feedback to the leaflet author. About Me ! I’m a Mexican student doing a PhD in Web Science at University of Southampton. I have a BSc in computer science and an MSc in Web Science. I like reading, gothic rock and extra spicy food. SPECIFIC COMMENTS Is this -rehabilitation- to cut cost by the NHS What was the result of previous studies & how long ago? -Rehabilitation- may needed to be explained to an old person I would like this to be on a website or email as it is a lot to ask people to write Don't fully understand what a randomised controll is. Wordy Why are they doing it then? GLOBAL COMMENTS I think it could have been presented in a clearer way by making it more visually It was explicity and it encouraged people to take part in this study, while also It was interesting but confusing The leaflet was ok and covers the relevant questions It was excellent Original PIL Document Json Representation Web Platform to Collect Public Feedback Adding: Sentiment Analysis Content Analysis Clustering Analysis Enhanced feedback for the leaflet author

Transcript of F% 5 .G@LG FGC % % @! C% G G% CEAGC, @ GF · 2020. 5. 6. · FCGC% +" EC E AL 5L GG 5LGGFCGC% +" E...

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Issues with Patient Information Quality

Patient information leaflets (PILs, documents used to inform patients about clinical trials) have been found lacking. They are badly written, hard to understand and are not read. However, these documents are essential to enable informed consent.

Results so far

• Public feedback captured on PILs relates to issues in writing and information presentation

• The use of subjective grading for PIL quality only accounts for 8% of the variance in patient understanding scores (study based on EQIP score & Knapp topics).

• When comments on specific PIL sections are analysed independently, general comments and subjective leaflet quality grades do not contribute significantly to EQIP score

Challenge

Can text analytics enhance the public feedback on Patient Information, by:1. Identifying sections that produce highly

emotive comments that compromise quality.2. Employing quantitative content analysis

metrics to identify sentences that are too hard to understand.

3. Employ comments from similar leaflets to enhance the feedback to the leaflet author.

About Me !

I’m a Mexican student doing a PhD in Web Science at University of Southampton. I have a BSc in computer science and an MSc in Web Science. I like reading, gothic rock and extra spicy food.

SPECIFIC COMMENTS

Is this -rehabilitation- to cut cost by the NHSWhat was the result of previous studies & how long ago?-Rehabilitation- may needed to be explained to an old personI would like this to be on a website or email as it is a lot to ask people to write Don't fully understand what a randomised controll is.

Wordy

Why are they doing it then?

GLOBAL COMMENTS

I think it could have been presented in a clearer way by making it more visually It was explicity and it encouraged people to take part in this study, while also

It was interesting but confusingThe leaflet was ok and covers the relevant questions

It was excellent

Original PIL Document

Json Representation Web Platform to Collect Public Feedback

Adding:Sentiment AnalysisContent AnalysisClustering Analysis

Enhanced feedback for the leaflet author